Review of Disability Studies: An International Journal

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The Review of Disability Studies: An International Journal

Volume 1, No. 1, 2004
ISSN (in progress)
www.rds.hawaii.edu
Copyright 2004, All Rights Reserved by the Center on Disability Studies

University of Hawaii at Manoa, Honolulu, Hawaii, U.S.A.


"An International Arena for Disability Studies" - The Review of Disability Studies, founded in 2003 by the late Dr. David Pfeiffer, is an internationally-focused academic journal in the field of Disability Studies. The journal contains research articles, essays, bibliographies, and reviews of materials relating to the culture of disability and people with disabilities. It also publishes forums on disability topics brought together by forum editors of international stature. Poetry, short stories, creative essays, photographs, and art works related to disability are also published. For information about how to submit a manuscript, please see the back cover of the journal or go to the web at www.rds.hawaii.edu. The journal is published four times a year, in both print and electronic format, and runs approximately one hundred pages an issue. A subscription is necessary to access both the print and online versions of the journal. Subscriptions cost $50.00 (U.S.) for individuals, $100.00 (U.S.) for institutions and libraries, and $25.00 (U.S.) for students. There is a $15.00 (U.S.) extra charge for shipping outside of the U.S. and Canada (airmail). To subscribe to the journal, download or submit a subscription form at www.rds.hawaii.edu, or fill out the form included in print copies of the journal and send with payment to: The Review of Disability Studies, Center on Disability Studies, University of Hawaii at Manoa, 1776 University Avenue, UA 4-6, Honolulu, HI 96822, U.S.A. Tel: 808-956-5688 Fax: 808-956-7878.

Permission to copy portions of this journal for non-commercial purposes will be handled in accordance with the fair use principle. To obtain reprint permission, please contact Associate Editor, Dr. Megan Conway, at the address above, or email her at submissions_rds@hawaii.edu.

Editors - Founding Editor, David Pfeiffer, Ph.D. (1934-2003); Editor, Robert A. Stodden, Ph.D., Center on Disability Studies, University of Hawaii at Manoa, stodden@hawaii.edu; Associate Editor and Reviews Editor, Steven E. Brown, Ph.D., Center on Disability Studies, University of Hawaii at Manoa, sbrown8912@aol.com; Associate Editor and Submissions Editor, Megan A. Conway, Ph.D., Center on Disability Studies, University of Hawaii at Manoa, mconway@hawaii.edu
The editors do not necessarily agree with the viewpoints expressed in each article, however, we support the expression of diverse opinions and conclusions. If readers feel strongly about any articles it is suggested that they compose a reasonable, articulate, well-researched response, which will be considered for publication.

The Editors would like to thank the following individuals for their support of the Review of Disability Studies (RDS):


RDS Distinguished Fellows - Barbara Altman, U.S.A.; Rolf Bergfors, Sweden; Frank Bowe, U.S.A.; Tanis Doe, Canada; Lex Frieden, U.S.A.; Gisella Hermes, Germany; Judith Heumann, U.S.A.; Kalle Konkkola, Finland; Kathy Martinez, U.S.A.; Mark Medoff, U.S.A.; Osamu Nagase, Japan; Susan O'Hara, U.S.A.; Trevor Parmenter, Australia; Joakim Peter, Chuuk, Federated States of Micronesia; Adolf Ratzka, Sweden; Katherine Seelman, U.S.A., Susan Sygall, U.S.A., and Anthony Thanasayan, Malaysia.
RDS Manuscript Review Board - Linda Toms-Barker; Cheryl Bartlett; Rhonda Black; Leslie Chenoweth; Peter Dowrick; Lillian Gonzales Brown; Marilyn Hammond; Norma Jean Hemphill Stodden; Jean Johnson; Richard Keller; Susan Koppelman; David Leake; Gary Linn; Alex Lubet; Sally Nhomi; Beth Omansky Gordon; Deborah Phillips; Trevor Parmenter; Fred Pelka; Jim Skouge; Mark Sherry; Garnett Smith; Margaret Vickers, and Jo Ann Yuen.
TABLE OF CONTENTS

Review of Disability Studies, Volume 1, Issue 1, 2004

Preface
Tribute to Dr. David Pfeiffer, 1934-2003
A New Journal Is Born

David Pfeiffer, University of Hawaii at Manoa


Upcoming Forums: Announcements and Call for Papers
Spring, 2004, Research on Postsecondary Education and Individuals with Disabilities

Summer, 2004, On the Cutting Edge - Conference Papers

Fall, 2004, Infusing Disability Culture into Education
Forum: Disability Culture - A Decade of Change
Forum Editor Introduction: Disability Culture - A Decade of Change

Steven E. Brown, University of Hawaii at Manoa


An Essay on the Beginnings of Disability Culture and Its Study

David Pfeiffer, University of Hawaii at Manoa


Disability, Identity, and Cultural Diversity

Stephen French Gilson and Elizabeth DePoy, University of Maine


On Deaf Ears: Disabled in Hollywood

Mark Medoff, Florida State University


"I'll pick you up by your back brace and throw you like a suitcase": On Naming Discrimination Against Disability

Jillian Weise, University of North Carolina at Greensboro


The Difficulty with Deafness Discourse and Disability Culture

Tanis Doe, University of Victoria, Canada


From the Cripple-Power-Festival to Independence Days: Disability Culture in Germany

Ottmar Miles-Paul, Kassel, Germany


Personal Reflections on Disability Culture

Steven E. Brown, University of Hawaii at Manoa


Research Articles
Exploring Disability Hate Crimes

Mark Sherry, Chicago Institute for Disability Research

Attitudes Toward Persons With Disabilities Among Japanese Social Work Students

Reiko Hayashi and Mariko Kimura, Department of Social Work, Japan Women's University, Japan

On Behalf of the I.W.W.: Helen Keller's Involvement in the Labor Movement

Mary M. Fleming and William H. Ross, University of Wisconsin--La Cross


Disability in Chronic Fatigue Syndrome and Idiopathic Chronic Fatigue

Adam W. Carrico, Leonard A. Jason, Susan R. Torres-Harding, and Elizabeth A. Witter, DePaul University


Framing Nancy Mairs: A Documentary Project

Janice L. Dewey, University of Arizona


The Role of Occupational Therapy in Rural Healthcare: A Case Study on Farmers with Disabilities

Jennifer Coles and Megan O'Hare, Creighton University


Infusing Disability Studies into "Mainstream" Educational Thought: One Person's Story

David J. Connor, Columbia University


Slipping the Surly Bonds of the Medical/Rehabilitation Model In Expert Witness Testimony

Patricia A. Murphy, University of Toledo


Researching the Social Construction of Blindness

Beth Omansky Gordon, The University of Queensland, Australia


Tunes of Impairment: An Ethnomusicology of Disability

Alex Lubet, University of Minnesota


Essays and Creative Works
Will the Next Generation Please Step Forward? A Legacy for the Next Generation of Troublemakers

Megan A. Conway, University of Hawaii at Manoa


Bibliographies and Resources
Still Celebrating Disability Culture: A Peek at the Annotated, Disability Culture Bibliography

Steven E. Brown, University of Hawaii at Manoa


Academic Programs in Disability Studies

Steven J. Taylor and Rachael Zubal-Ruggieri, Syracuse University


Book, Art and Film Reviews
Book Review: Movie Stars and Sensuous Scars by Steven E. Brown

Tanis Doe, University of Victoria, Canada


Book Review: Disability and Culture: Universalism and Diversity edited by T. Bedirhan Ustun et al.

Jean Johnson, University of Hawaii at Manoa

Monograph Review: Celebrating Disability Arts published by Arts Council England

Steven E. Brown, University of Hawaii at Manoa

Music Review: Angryfish, Eight Men Called No, and Barbed Wire and Pot-Holes

Steven E. Brown, University of Hawaii at Manoa


Correspondence
Letters to the Editor, Commentary
Announcements
Annual Pacific Rim Conference on Disabilities, Honolulu, March 29-30, 2004
RDS Information
Information for Advertisers

Subscription Form

Information for Submissions (back cover)
PREFACE
Tribute to David Pfeiffer

1934 - 2003


PHOTO OF DAVID PFEIFFER

Professor David Pfeiffer passed away unexpectedly on December 17, 2003. An internationally recognized scholar in the field of disability studies, Pfeiffer, who used a wheelchair as a result of childhood polio, received a Ph.D. in Political Science from the University of Rochester in 1975. Pfeiffer retired in 1997 from Suffolk University in Boston, where he served as Chair of the Department of Public Management. He also initiated Suffolk's Disability Studies concentration in the MPA program.

In Hawai`i, Pfeiffer became Resident Scholar at the Center on Disability Studies, Visiting Scholar in the Department of Political Science, and affiliated with the School of Medicine. Pfeiffer published over 200 articles about disability studies, primarily in refereed journals. He also was a well-known advocate who spent the years from 1977 to 1980 as the Massachusetts State Director for the White House Conference on Handicapped Individuals. He was instrumental in the creation of the Massachusetts Office on Disability, organizing the Massachusetts Coalition of Citizens with Disabilities, and amending the state constitution to prohibit discrimination based on disability. Among his numerous other accomplishments, awards, and activities, he was a Past-President of the Society for Disability Studies and editor of Disability Studies Quarterly. In recognition of his combined excellence in the areas of research, teaching, and advocacy in disabilities, the American Public Health Association DisAbility Special Interest Group awarded Pfeiffer the Alan Meyers Award during its annual meeting in San Francisco in November 2003.

He also served as a mentor to many disability studies scholars and writers, as demonstrated in the many tributes that arrived after he passed on.

At the time of Pfeiffer's death, he was completing a book about disability theories and leading the effort to develop the Review of Disability Studies (RDS). In recognition of his many contributions RDS will perpetually recognize him as Founding Editor.

He is survived by his wife, Barbara, of Hawaii, son Clifford, of Massachusetts and daughters Katherine Pfeiffer and Carol Messmore, her husband Peter, and their son, Peter, all residing in Florida.

Consistent with Dr. Pfeiffer's wishes and with the support of his


family, anyone wishing to acknowledge his life-long accomplishments, may make a contribution to the Dr. David Pfeiffer Memorial Fund being established with the University of Hawai'i Foundation, Account #120-3263-4 (UAP) at the following address: University of Hawai'i Foundation, PO Box 11270, Honolulu, HI 96822-0270.
A Selection of Tributes to David Pfeiffer
"I and fellow Australians who knew David were saddened to learn of his recent passing. He was a giant among us in terms of his wisdom, energy, advocacy and plain common sense. Like many great people before him, his legacy will live on in our hearts and minds." Trevor Parmenter
"I first met David in 1982 when he and Irv Zola participated in an Office of Technology conference on mental health adaptation to physical disability. That year, I sat at the feet of these two plus Hugh Gallagher as they opened my eyes and heart with their powerful stories to the world of physical disability that I, as a mental health clinician, had never known...Ten years ago, when David was Chair of the Public Management Department oat Suffolk...he was a leader in research, teaching and advocacy and developed a devoted group of students and associates...All of the above, though, misses the real David...He was such a warm, kind person. He was a lover of fine aged port and stimulating conversation. He was a mentor, a father to many, and a role model for us all. We missed him when he decided to go surfing in Hawaii. I miss him now that he is gone." Richard Beinecke
"[David] was a person who made a difference...I am thankful that the DisAbility Special Interest Group of APHA honored him with the Alan Meyers Memorial Award in November of this year for his scholarship, advocacy and teaching." Gloria Krahn

"I came to know David first and foremost through the eyes of his daughter, Carol, some 25 years ago when we lived in the same freshman dorm at George Washington University and became fast friends. I will never forget the love and pride she had for him or how she stared people down when he fell coming into the dorm rather than have them gush all over him. Somehow this thing they call disability pride never seemed as palpable as it did after seeing him through her eyes." Bob Williams

We at NIDRR were very sad to hear of the death of Dr. David Pfeiffer. Please accept our deepest sympathies. As a fellow Bostonian, I remember David from his days at Suffolk in Boson. He was a tireless worker to maximize the full inclusion, social integration, employment and independent living of individuals with disabilities of all ages." Richard Melia
"...I could tell [David] was a man of integrity. I would watch him at SDS conferences, intrigued by his big and strong presence and his confidence. I thought: here is a man who likes who he is..." Laureen Summers
"...Often I feel as if I am a voice in the wilderness. [David's] support meant a great deal to me..." Jim Overboe
"...[David] was kind and supportive. He encouraged me to join the field. He sent me articles on 5.25 floppy inch disks. We laughed at the time that perhaps we were the last ones using these disks and WordPerfect 5.0...I will miss him and his leadership. I regret that there will be no more lunch discussions with him. I mourn his passing and I salute him as a brother. Hail and farewell." Jim Ferris
"A smile and a hug and a raised fist for David, to all his friends, and to his wife Barbara. I'm sitting here in sad shock, full of memories of David and glad to have a place where they might land. We met in 1977 when he chaired the Massachusetts component of the White House Conference on handicap...He was the first chair of the Adaptive Environments board of directors in 1978. Many stories to tell from those early days...." Elaine Ostroff

"...David was a wonderful mentor to me in graduate school in Boston back in the 1990's, and for a couple of years I was privileged to assist him in teaching his Disability Studies courses at Suffolk University. I will never forget when David asked me in our first conversations if I would stutter, as I usually do, when I addressed his class at Suffolk. Braced to weather another job lost (ADA or no ADA), I answered in the affirmative. I was surprised and gladdened when David replied that it would be good for the students to hear me stutter. It would be important for them to realize that an individual with a speech impairment can communicate and explore complex thoughts and feelings in the classroom. I do quite a bit of teaching now, and occasionally I still look for support to the strength of David's firm conviction that people who stutter can successfully teach. Thank you David, for your splendid contribution to my life and to the lives of so many and for your great dedication to the field of Disability Studies. I hope that have been able to return your [dedication]." Miriam Hertz

"Sorry we did not get your message until Sunday [that the celebration of David's life had been postponed]. However, the gift given to us was spectacular! Thank you, David. The weather was gorgeous. My daughter was delighted to play along the beach. We made birds from palm leaves as we chatted with a group of tourists from England. It has been years since I had watched a sunset. It did my soul wonders. I will always remember David this way." Richard Radtke
"David worked behind the scenes many times and I think many of us on the 'in' crowd don't appreciate his many accomplishments...I knew David because of his work here in Boston, where he spent most of his life. David, from Suffolk University, and Irv Zola , from Brandeis University, were two of the great disability philosophers here...In 1979 RSA $2,000 in end-of-year money...During those days consumer involvement was a radical concept...David was one of a dozen cross-disability leaders who planned a conference, funded by the $2,000, that founded the Massachusetts Coalition of Citizens with Disabilities. Dave continued to advice the organization for many years, in addition to his work with the Boston Self-Help Center (one of the first and best self-help organizations for people with disabilities)...He worked hard to create effective advocates to interface with government at all levels...

"David is best known for his work as the Chairperson of the Suffolk University Master's in Public Administration Program. He saw the valuable role that educated people can make on the inside, as well as the outside of government. He taught skills to people, with and without disabilities, that would make them better bureaucrats...I'm afraid that we've lost another vital philosopher and touchstone...The World War II generation is touted as 'America's greatest generation.' I think that to people with disabilities, the post-polio survivors of the 1940's and 1950's will be known as our greatest generation." John Nelson
A New Journal Is Born

David Pfeiffer, Ph.D.

Center on Disability Studies

University of Hawaii at Manoa


The need for a new journal for the field of disability studies has been declared for some time and from various perspectives. Without naming them there are only four journals which characterize themselves as being in the field of disability studies. There is one journal published in the United Kingdom which was very international, but over the last several years it has almost exclusively published articles written from the viewpoint of the social model, used qualitative methodology, and had a sociological orientation. There is a second journal published in the United Kingdom which was very international, but it was written from the viewpoint of medical rehabilitation, used narrow quantitative methodology, and had a medical orientation. It often publishes articles which downplay the role of people with disabilities. There is nothing wrong with these orientations (except for discounting the views of people with disabilities), but they are not the only ones.

Crossing the Atlantic there is a third journal published in the United States which was not very international, was written from the viewpoints of vocational rehabilitation and special education, and used various methodologies and orientations. It was short on articles using the disability paradigm. There is a fourth journal published in the United States which was moderately international and was open to various viewpoints and methodologies. It strongly endorsed the disability paradigm, welcomed younger scholars and non-academics, and attempted to be a forum for essays and poetry as well as research articles. It is presently undergoing a reorganization and it is too early to tell what its future may bring. Members of the governing board of the association which owns it often were dismayed at what they saw as a social science orientation of its articles. They called for articles to be published which showed a post-modern, humanist orientation. There is nothing wrong with these orientations, but again they are not the only ones.

There are some journals which focus only on one disability or experience. They are narrow and usually are concerned with "best practices" and similar things. There also were a number of special symposiums concerned with disability studies published in journals which are identified with the traditional academic disciplines. Although these symposiums and forums were worthwhile, they were only occasional outbursts of disability studies scholarship and writing. In other words, the outlets for disability studies scholars is limited outside of the four journals just described.

Disability studies is a growing field. There are a number of approaches and orientations in the field. The existing journals do not provide enough opportunity for the established and the emergent scholars in the field. In addition they all fail in their intent to be international. In part it is because of the language of publication and in part it is because of problems of outreach. There is a need for a journal which attempts to be very international, welcomes all orientations, publishes anonymously refereed research, and is an outlet for writers who do not wish to take the time nor do they need anonymous refereeds endorsements.

The Center on Disability Studies, University of Hawaii at Manoa, is attempting to meet these needs by starting the publication of a new journal, The Review of Disability Studies: An International Journal. The new journal will contain peer reviewed research articles, essays, and bibliographies relating to the culture of disability and the experience of people with disabilities. It will also publish forums on disability topics brought together by forum editors of international stature. Poetry, short stories, creative essays, photographs, and artwork related to disability are also invited. Reviews of books, films, videos, art, music, and photographs relating to disability will be included.

These items will be reviewed to ensure a high standard of professional quality by an in-house and external editorial staff with the highest qualifications and reputation. If appropriate and specifically requested, a manuscript will be anonymously reviewed by two outside peer reviewers and this fact will be noted when it is published. There are many scholars who are in a tenure track position or who are applying for promotion who must have anonymously peer-reviewed publications. While we neither condone nor agree with the power struggles which this requirement represents and we do not concede that anonymous peer reviews guarantee quality, we do understand that many academics and non-academics as well exist in such a milieu. In any event, The Review will represent quality in all of its published writings.

The Review will be published on the Web and will be produced in a print version. The first two issues will be freely available on the Web, but a subscription is necessary to obtain printed copies. The charter subscription price is $50 US for individuals, $25 for students, and $100 US for libraries and institutions with a $15 US fee for postage outside of the US and Canada because it will be sent via air mail in order for it to arrive within a reasonable time. Student-subscription rates are available.

The Review is open to all perspectives, approaches, views, and paradigms relevant to the study and experience of disability. There will be no one view represented with one caveat. Any submission based on the functional, deficit view of disability will be questioned. The editors can conceive of an article written from this viewpoint which can make a contribution, but since the deficit view of disability causes prejudicial behavior and pejorative attitudes toward people with disabilities it will be carefully evaluated. Generally, such a perspective is not considered to be within the purvey of disability studies. In fact, it is considered to be the antithesis of the study of disability and people with disabilities. In addition, any inspirational story or writing will be considered outside of the field of disability studies because the deficit view is implicit in it.

There are a few journals which are read by persons working in the field of developmental disabilities, in the field of disability studies, and in the field of gerontology. They each appear to have their own sphere of research and publication with many persons in gerontology even refusing to consider disability to be a legitimate concern beyond being a deficit which has to be dealt with. The Review will attempt to bridge this gap. The editors of The Review consider this gap to be an artificial and a non-productive one.

In addition there are few journals which are truly international in authorship, readership, and concerns. The Review will attempt to remedy this unfortunate situation.




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