Review of the Research to Identify the Most Effective Models of Practice in Early Intervention for Children with Autism Spectrum Disorders


Appendix H: Autism Advisor Survey



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Appendix H: Autism Advisor Survey

Review of Autism Interventions Survey

Created: May 02 2011, 10:34 PM

Last Modified: May 22 2011, 5:45 PM

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Review of Autism Interventions Survey

Page 1 - Question 1 – Choice - One Answer (Bullets)

SECTION 1: DEMOGRAPHICS

Where is your service located?


  • Queensland

  • New South Wales

  • Victoria

  • Australian Capital Territory

  • Tasmania

  • South Australia

  • Northern Territory

  • Western Australia

Page 1 - Question 2 - Choice - One Answer (Bullets)

How long have you been working as an autism advisor?



  • 0-6 months

  • 6-12 months

  • 1-2 years

  • More than 2 years

Page 1 - Question 3 - Choice - Multiple Answers (Bullets)

What is your professional background?



  • Teaching

  • Early childhood

  • Occupational therapy

  • Speech pathology

  • Psychology

  • Social work

  • Other, please specify

Page 1 - Question 4 - Choice - One Answer (Bullets)

How long have you been working in the area of Autistic Spectrum Disorder?



  • Less than 2 years

  • 2-5 years


  • 6-10 years

  • More than 10 years.

Page 1 - Question 5 - Open Ended - Comments Box

What training if any have you received in ASD specifically?

Page 1 - Question 6 - Choice - Multiple Answers (Bullets)

Is your service affiliated with?



  • A state based autism association

  • Another autism provider

  • or you are sole provider

  • Other, please specify

Page 2 - Question 7 - Choice - One Answer (Bullets)

SECTION 2: ABOUT YOUR ROLE AND EXPERIENCES AS AN AUTISM ADVISOR

When parents first make contact, approximately how long do you spend on the phone or in person with them?


  • Less than 30 minutes

  • 30-60 minutes

  • 1-2 hours

  • More than 2 hours.

Page 2 - Question 8 - Choice - One Answer (Bullets)

Did you feel adequately prepared to undertake your role?



  • Very well prepared

  • Prepared

  • Neither prepared or not prepared

  • Not prepared

  • Not at all well prepared

Page 2 - Question 9 - Choice - One Answer (Bullets)

How well do you feel the needs of children with ASD are catered for by the current HCWA package eligible interventions?



  • Very well

  • Well
  • Adequately


  • Somewhat poorly

  • Very poorly

Page 2 - Question 10 - Open Ended - Comments Box

Please comment on how well you feel the needs of children with ASD are being met from your experience

Page 2 - Question 11 - Choice - One Answer (Bullets)

Do you think that most eligible interventions (ie. more than 70%) reflect current best evidence on effective early intervention for children with ASD?



  • Very well evidenced

  • Well evidenced

  • Adequately evidenced

  • Inadequate evidence

  • Very lacking in evidence.

Page 2 - Question 12 - Open Ended - Comments Box

From your experience please comment on whether (if any) information is provided to parents about the level of evidence for eligible interventions?

Page 2 - Question 13 - Yes or No

Do you have any specific concerns about current eligible interventions?



  • Yes

  • No

  • If you answered yes, please tell us about these concerns

Page 2 - Question 14 - Yes or No

Are there any interventions that you feel should be funded which are not currently?



  • Yes

  • No

  • If yes, please provide the name of the intervention and why you feel it should be funded

Page 2 - Question 15 - Yes or No

Are there any interventions which are currently funded which you feel should not be?



  • Yes

  • No
  • If yes, please provide the name of the intervention and why your feel it should not be funded.


Page 2 - Question 16 - Choice - Multiple Answers (Bullets)

What are the issues which impede parents from accessing eligible services?

You may choose more than one response


  • Locality/distance

  • Cost

  • Waiting lists

  • Availability of providers

  • Lack of adequate resources

  • Family finances

  • Other, please specify

Page 2 - Question 17 - Rating Scale - Matrix

How adequate do you consider?






More than adequate

Adequate

Inadequate

Totally inadequate

The current provision of eligible interventions in the HCWA package in terms of the amount of funding allocated per family









The range of interventions offered to families








The quality of the interventions offered










The time frame for service provision (ie. only children less than seven years of age)









Page 2 - Question 18 - Choice - One Answer (Bullets)

There are a number of criteria that FAHCSIA requires of eligible interventions. These are that the interventions

are well structured, organised, regular and predictable and focused on specific objectives;  

are consistently managed;

focus on attention, compliance, imitation, language and social skills;

provide a highly supportive teaching environment to maximise learning;

have a low child/staff ratio for centre based programs with a maximum of 2-4 children per adult

How well do you feel the majority of services (ie. more than 70%) adhere to these criteria?



  • Very well

  • Well

  • Unsure

  • Not well

  • Not at all well

  • Don't know

Page 2 - Question 19 - Choice - One Answer (Bullets)

Early intervention services must have an ASD specific content and focus including the practices below:

teaching joint attention skills, play and imitation skills; building functional communication skills. This may include language and Alternative and Augmentative Communication (AAC) such as picture systems, gestures and signing;

teaching social interaction skills in a supported environment;

daily living skills, e.g. toileting, washing hands, eating;

management of sensory issues;

generalisation of learning strategies to new situations and with new people;

management of undesirable or challenging behaviors; and

early engagement and recognising emotions.

How well do you feel the majority of services (i.e. more than 70%) adhere to these practices?


  • Very well

  • Well

  • Unsure

  • Not well

  • Not at all well

  • Don't know

Page 2 - Question 20 - Choice - One Answer (Bullets)

Early Intervention services for children under the HCWA strategy must: 

have a functional approach to problem behaviours including teaching alternative appropriate skills and positive behaviour support, and communication skills to replace the behaviours of concern.

be designed in collaboration with the family and include family involvement.  Through advice and information, families are supported to help their child with play, social and communication skills development, and with the management of challenging and repetitive behaviours.

families, teachers and therapists are to collaborate in preparing the child for transition to school or to another setting.

must provide systematic connection and integration between the early intervention program and the next stage for the child, whether this transition is to school or to another therapeutic or special education setting.

ensure that the child's social, cognitive and/or adaptive functioning before, during and at the end of their treatment plan is systematically evaluated and reported according to the requirements of the Deed of Agreement.

How well do you feel the majority of services (ie. more than 70%) adhere to these guidelines?



  • Very well

  • Well

  • Unsure

  • Not well

  • Not at all well

  • Don't know

Page 3 - Question 21 - Choice - One Answer (Bullets)

SECTION 3: YOUR PERSPECTIVES ABOUT PARENTS' NEEDS, SATISFACTION WITH PANELS AND ELIGIBLE INTERVENTIONS

On average, how long is it between when parents have received a diagnosis for their child and when they make contact with you as an Autism Advisor?


  • Less than a month

  • 1-2 months

  • 3-5 months

  • 6 months or more

Page 3 - Question 22 - Choice - Multiple Answers (Bullets)

What are parents' main needs when they make contact with you as an Autism Advisor?  

You can choose more than one option.


  • Emotional support

  • Information about ASD

  • Information about services available

  • Information about government support

  • Information about parent support groups

  • Just need to chat

  • Information about how to choose the right services/interventions for their child/family

  • Other, please specify

Page 3 - Question 23 - Choice - Multiple Answers (Bullets)

What type of information do parents typically want?

You can choose more than one option.


  • Services/interventions in their locality

  • Cost of interventions

  • Evidence behind interventions

  • Other parents experiences with interventions

  • Websites

  • Local autism associations/parent groups

  • Which intervention is right for their child

  • Other, please specify

Page 3 - Question 24 - Choice - One Answer (Bullets)

Do parents typically find the intervention they want in their locality?



  • Yes all of the time

  • Yes most of the time

  • Not usually

  • Never

Page 3 - Question 25 - Choice - One Answer (Bullets)

How satisfied are parents with the current list of eligible interventions available?


  • Very satisfied

  • Somewhat satisfied

  • Neither satisfied nor dissatisfied

  • Dissatisfied

  • Very dissatisfied.

Page 3 - Question 26 - Open Ended - Comments Box

If parents are dissatisfied, please comment on their main issues

Page 3 - Question 27 - Choice - One Answer (Bullets)

Generally, how satisfied are parents with the interventions they receive?



  • Very satisfied

  • Somewhat satisfied

  • Neither satisfied nor dissatisfied

  • Dissatisfied

  • Very dissatisfied.

Page 3 - Question 28 - Yes or No

Are there any particular interventions which parents are most satisfied with?



  • Yes

  • No

  • If yes, please provide details of the interventions and why parents are satisfied with them

Page 3 - Question 29 - Yes or No

Are there any interventions which parents are least satisfied with?



  • Yes

  • No

  • If yes, please provide details of the interventions and why parents are dissatisfied

Page 3 - Question 30 - Choice - One Answer (Bullets)

Are parents' needs post diagnosis being met with the HWCA eligible interventions?



  • Yes very well

  • Adequately

  • Not well

  • Not at all well

Page 3 - Question 31 - Open Ended - Comments Box

The Early Intervention Operational Guidelines outline the therapies eligible for funding under the HCWA package.  See the url below for more information on these  http://www.fahcsia.gov.au/sa/disability/funding/earlyintervention/operation_guidelines/Pages/default.aspx

Do you have any suggested improvements for the guidelines?

Page 3 - Question 32 - Open Ended - Comments Box

Are you aware of any specific concerns that the parents you engage with have about any of the eligible interventions?

Please provide details if there are any concerns.

Page 3 - Question 33 - Open Ended - Comments Box

Are there any interventions that parents would like access to, that they currently do not have access to?

Please provide details.

Page 3 - Question 34 - Open Ended - Comments Box

Do you have any other comments?

Thank You Page

Thank you for taking the time to complete this survey. Your responses will assist in the review of the HCWA funded interventions to ensure that they are comprehensive and in keeping with latest evidence based research and best practice standards




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