The blind californian



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The Blind Californian Winter 2017




THE BLIND CALIFORNIAN

Quarterly Magazine of the

CALIFORNIA COUNCIL OF THE BLIND

Winter 2017

Volume 61, No. 1
Published in Braille, Large Print, audio CD, Email (bc-subscribe@ccbnet.org), and Online in readable and downloadable text and audio media
Judy Wilkinson, President

1550 Bancroft Avenue #113, San Leandro, CA 94577-5264

cell: 510-388-5079

president@ccbnet.org
Executive Office:

California Council of the Blind

1303 J Street Suite 400, Sacramento, CA 95814-2900

800-221-6359 toll free

916-441-2100 voice; 916-441-2188 fax

Email: ccotb@ccbnet.org; Website: www.ccbnet.org
Jeff Thom, Director Governmental Affairs Committee

800-221-6359 toll free; 916-995-3967 cell

governmentalaffairs@ccbnet.org
Webmaster:

webmaster@ccbnet.org
Mike Keithley, Editor

191 East El Camino Real #150

Mountain View, CA 94040

650-386-6286

editor@ccbnet.org

Susan Glass, Associate Editor


408-257-1034

editor@ccbnet.org
The CALIFORNIA CONNECTION is a weekly news service provided:


  • by phone, in English and Spanish at 800-221-6359 Monday through Friday after 5 p.m. and all day on weekends and holidays.

  • by email subscription. Send a blank message to connection-subscribe@ccbnet.org;

  • or on the web at www.ccbnet.org.


Submissions for the California Connection can be emailed to ca.connection@ccbnet.org.
Non-members are requested and members are invited to pay a yearly subscription fee of $10 toward the production of THE BLIND CALIFORNIAN.
In accepting material for THE BLIND CALIFORNIAN, priority will be given to articles concerning the activities and policies of the California Council of the Blind and to the experiences and concerns of blind persons. Recommended length is 1800 words.
The deadline to submit material for the spring, 2017 issue of THE BLIND CALIFORNIAN is noon, February 15, 2017.
Please send all address changes to the Executive Office.

* * *

TABLE OF CONTENTS


From the Editor
by Mike Keithley 5

From The President’s Desk: The Road Taken


by Judy Wilkinson 6


CCB Governmental Affairs Report
by Jeff Thom 10


The Importance in Telephoning Your Representatives When Lobbying on an Issue
by Daniel Victor 16

Fresno Chapter Fundraiser

by Sylvia Lopez 21


Many Stones Can Form an Arch: A Profile of the Humboldt Council of the Blind
by Susan Glass 23

Remembering Greg Fowler


by Roger Petersen 30

For Those We Have Lost: Of Grief, Gratitude, and Going Forward


by Bonnie Rennie 33

Teddie-Joy Remhild: Writer and Activist


by Susan Glass 35


The Fabulous Fogartys
by Cathie Skivers 41

$1000 Grant Available Through the Barbara Rhodes Adaptive Technology Fund


by Alice Turner 45


Scholarships 47

Historic Accessible Book Treaty Takes Effect


edited from the ACB Leadership List 49


First Artificial Pancreas Approved 52

CCB Membership Awards


by Vivian Younger, Membership Committee Chair 55

Letters


from Walter Raineri 57


California Council of the Blind
Officers and Board as of July 1, 2016 60


* * *

From the Editor
by Mike Keithley

It's raining while I'm writing, and I'm thinking of a Redwood tree in Cuesta Park in Mountain View that I often visit with Star on morning walks. It's not much more than a sapling ("I hope to have a bass voice soon!") so it hasn't been around much; but it's fun saying hello, putting my arms around the rather spongy bark and noting the morning moisture. And in the summer time there's that wonderful resinous smell as the sun shines on the greenery. I believe there really is more oxygen under that tree at that time.

Anyway, welcome to the winter, 2017 BC. Much of the music in this issue is remembrance: Susan Glass tells us about Teddie-Joy Remhild, Roger Petersen remembers Greg Fowler, and Cathie Skivers writes fond, appreciative memories of George Fogarty.
But we also have an amazing profile of CCB's Humboldt chapter, two fundraising articles, interesting letters, Judy Wilkinson's ominous President's Message, and Jeff Thom's governmental Affairs report.
Enjoy!

* * *




From The President’s Desk: The Road Taken
by Judy Wilkinson


On this beautiful mid November autumn day sitting on my deck, I am reminded of the famous poem by Robert Frost about "The Road Not Taken".
No one will dispute that our organization is at a crossroads, and it should come as no surprise that our very survival hangs in the balance. What road shall we take?
On the road we have traveled for the 82 years of our existence, there have been tremendous accomplishments and incalculable contributions to the lives of Californians who are blind or have low vision. But of late, the terrain has changed, and our road is becoming more and more treacherous. However much we revere the organizational model which has brought us so far, real danger exists that without significant modernization, this road can lead us no further.

Put starkly, the volunteerism, self-financing and slow-moving governance processes on which we have relied leave us without the expertise or resources necessary to comply with the increasingly complex web of legal regulations within which nonprofit organizations must operate. This model also leaves us unable to effectively compete for funds in today's highly-competitive and professionalized corporate and foundation funding environment.

We struggle every year just to keep our door open. Because we are forced to operate at a huge deficit, we will soon exhaust our dwindling reserves. Too many members finance CCB activities out of their own pockets. Support for growing membership: afraid not! Support for advocacy efforts: just ask Jeff Thom, our chief unpaid legislative advocate, how little he has been reimbursed lately! Support for my legitimate expenses are minimal and paid from reserves which I hesitate to further deplete. Funds for new projects: I don't think so!
Now let's travel the other road on which CCB embarked when we hired our full-time chief executive officer (CEO) Paul Shane, and Jennifer Caldeira, our now full-time Administrative Services Officer (ASO)).

This road has already had unexpected bumps: the demise and crash of several office computers necessitating an expenditure of $5,000 for new computers, a server, yes even new chairs. Our Technical Operations Group as well as their computer consultant have been warning us for several years that this day would come. Our stalwart van (bought over 15 years ago when the organization had more money) has died, leading us to develop a procedure for operating without it, which the new CEO and the Board have done. Things we previously did by the seat of our pants as it were, Paul is creating policies for: such as developing guidelines under which CCB can accept donations; such as a pay and reimbursement policy to cover employees or members when they travel on CCB business; such as a streamlined budget process. Paul is currently hard at work on a "Case Statement," a document about the organization, its history, its activities, its future plans. Such a document is necessary to seek funding opportunities for the organization. Depending where we are in the process when you read this, members and chapters will be seeing various surveys and questions to assist in gathering information for this critical document. We have launched our first fundraising activity for 2017: a comedy night at Tommy t's in Sacramento on January 21. None of these things would have been handled as effectively or quickly without professional full-time attention and expertise.

The wise poet knew we would sometimes pine for the other road, the one not taken. And there is no guarantee that either road will lead us where we want to go, but we must take bold action. In choosing this road, I assure you that the values we have held dear for 82 years will continue to guide and define CCB.
Let me conclude by wishing you a joyous holiday season. As we begin the new year, I ask you to join me as we travel this challenging new road together.

* * *






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