The Changing Lives of Older Couples Study Wave I widow Follow-up Survey

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The Changing Lives of Older Couples Study

Wave I Widow Follow-up Survey

CODEBOOK

Facesheet

VAR #
1001 FS. Seq.#/CASE ID


1002 FS. Respondent # -- 1st 4 digits (CLOC ID#)


1003 FS. Respondent # -- last 2 digits, preprinted


[V1004: BUILD 6-digit Respondent ID# (V1002+V1003)]

Rev. 10/24/91

1005 FS. Result Code


01. Complete I'v

03. Complete Telephone I'v

05. Partial I'v

07. Partial Telephone I'v


1006 FS. Respondent "history": 2 digits


Code 1st 2-digit # precoded on Facesheet

[V1007 - V1010: BUILD = 0]


1011 FS1. INTERVIEWER's ID# (4 digits from label)


1012 FS2. Interview No.: (2 digits from box)


99. NA

1013 FS3. Date of Interview--MONTH


Code MONTH (01-12)

1014 FS3. Date of Interview--DAY


Code DAY (01-31)

1015 FS3. Date of Interview--YEAR


Code 4-digit YEAR (1988-1995)

1016 FS4. Length of Interview

Code # of MINS (001-240)

SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH

A1. First, I need to list all the people who live here. I don't need names, just the age, sex and relationship to you for each person. Let's start with you. How old are you?

Now I need the age, sex and relationship to you of any other adults and children who live here.
1101 A1. SUMMARY # Persons in HOUSEHOLD

┌──────────────┐

│0 in 1105-1131├─────01. One ┌──────────────┐

└──────────────┘ │Code # persons│

┌──────────────┐ │listed in grid│

│0 in 1108-1131├─────02. Two │(01-20). │

└──────────────┘ └──────────────┘

┌──────────────┐

│0 in 1111-1131├─────03. Three

└──────────────┘

┌──────────────┐

│0 in 1114-1131├─────04. Four

└──────────────┘

┌──────────────┐

│0 in 1117-1131├─────05. Five

└──────────────┘

┌──────────────┐

│0 in 1120-1131├─────06. Six

└──────────────┘

┌──────────────┐

│0 in 1123-1131├─────07. Seven

└──────────────┘

┌──────────────┐

│0 in 1126-1131├─────08. Eight

└──────────────┘

┌──────────────┐

│0 in 1129-1131├─────09. Nine

└──────────────┘

10. Ten

.

.



.

20. Twenty

99. NA

1102(#1) A1(a). MEMBERS OF THE HOUSEHOLD BY RELATIONSHIP TO RESPONDENT

1105(#2)

1108(#3) Partner/Spouse

1111(#4)

1114(#5) 01. RESPONDENT

1117(#6) 02. Spouse of R

1120(#7) 03. Partner of R

1123(#8)

1126(#9) Child

1129(#10)

10. Child(ren), NA sex (incl. foster child/stepchild)

11. Son (incl. adopted)

12. Daughter (incl. adopted)

13. Stepson (incl. partner's son)

14. Stepdaughter (incl. partner's daughter)

15. Son-in-law (incl. daughter's partner)

16. Daughter-in-law (incl. son's partner)

17. Foster son

18. Foster daughter

Parent/Grandparent
20. Parent, NA sex ("parents" code 21, 22)

21. Father (incl. adoptive father)

22. Mother (incl. adoptive mother)

23. Stepfather

24. Stepmother

25. Father-in-law (incl. partner's father); ("my in-laws" code 25 and 26)

26. Mother-in-law (incl. partner's mother)

27. Grandparent; great-grandparent, NA sex

28. Grandfather; great-grandfather

29. Grandmother; great-grandmother


Sibling/Sibling-in-law
31. Brother

32. Sister

33. Stepbrother

34. Stepsister

35. Brother-in-law

36. Sister-in-law

1102(#1) A1(a). Continued

1105(#2)


1108(#3) Other Relatives

1111(#4)

1114(#5) 40. Grandchild/great grandchild, NA sex

1117(#6) 41. Grandson; great grandson

1120(#7) 42. Granddaughter; great granddaughter

1123(#8) 43. Nephew

1126(#9) 44. Niece

1129(#10) 45. Uncle; great-uncle

46. Aunt; great-aunt

47. Cousin

48. Other "in-laws"

┌─────────┐

│Make Card├────────49. Other relative

└─────────┘




Unrelated Persons

62. Housemate/roommate

63. Household employee; live-in sitter; housekeeper

64. Friend

66. Person related to R's partner (exc. child or parent)

67. Roomer; boarder

┌─────────┐

│Make Card├────────97. Other unrelated person

└─────────┘

98. DK

99. NA
00. Inap, no further persons in HU


1103(#1) A1(b). SEX

1106(#2)


1109(#3) 1. Male

1112(#4) 2. Female

1115(#5)

1118(#6) 9. NA

1121(#7)

1124(#8) 0. Inap, no further persons listed

1127(#9)

1130(#10)




1104(#1) A1(c). AGE

1107(#2)

1110(#3) Code AGE (01-97)

1113(#4)

1116(#5) 01. One year or less

1119(#6)

1122(#7) 97. 97 years or more

1125(#8)

1128(#9) 98. DK

1131(#10) 99. NA
00. Inap, no further persons listed

[V1132: BUILD = 0]

1133 A2. I'd like to begin by asking you about the circumstances of your (husband's/wife's) death. How old was your (husband/

wife) when (he/she) died?
Code YEARS (40-97)
97. 97 years or more
98. DK

99. NA


SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH


VAR #

1201 A3. What was the cause of (his/her) death? (IF ACCIDENT,

1202 PROBE: What kind of accident? AND OBTAIN BRIEF

1203 DESCRIPTION OF CIRCUMSTANCES)
Use HEALTH CONDITION MASTER CODE
000. Inap, no further mention

1204 A4. INTERVIEWER CHECKPOINT

┌──────────────┐

│0 in 1205-1241├─────1. CAUSE OF DEATH WAS ACCIDENT, MURDER OR SUICIDE

└──────────────┘

┌──────────────┐

│0 in 1301-1344├─────2. ALL OTHERS

└──────────────┘


1205 A5. How long before your (husband's/wife's) death did you realize that (he/she) was going to die? (RECORD NUMBER OR



MARK BOX)
Code # (01-60), except:

┌──────────────┐

│0 in 1206-1207├─────96. NO WARNING/MINUTES

└──────────────┘

98. DK

99. NA
00. Inap, 1 in 1204


1206 A5. TIME UNIT


1. HOURS

2. DAYS


3. WEEKS

4. MONTHS

5. YEARS
9. NA
0. Inap, 1 in 1204; 96 in 1205


1207 A6. Was the cause of (his/her) death an ongoing condition that you knew about before, or did you only learn about it for

the first time shortly before (he/she) died?

┌─────────┐

│0 in 1208├─────────1. ONGOING

└─────────┘

2. FIRST TIME

8. DK

9. NA
0. Inap, 1 in 1204; 96 in 1205


1208 A7. Did (he/she) have any serious ongoing health problems?


1. YES

5. NO
8. DK

9. NA
0. Inap, 1 in 1204; 1 in 1207

1209 A8. Was your (husband/wife) aware that (he/she) was dying?


1. YES

┌──────────────┐

│0 in 1210-1212├─────5. NO

└──────────────┼

├─────8. DK

└─────9. NA


0. Inap, 1 in 1204

1210 A9. Did (he/she) seem to be at peace with the idea of dying?


1. YES

5. NO
8. DK

9. NA
0. Inap, 1 in 1204; 5, 8-9 in 1209

1211 A10. Did you and your (husband/wife) talk about the fact that



(he/she) might die?
1. YES

5. NO
8. DK



9. NA
0. Inap, 1 in 1204; 5, 8-9 in 1209

1212 A11. Did you and (he/she) talk about how you would deal with



being on your own once (he/she) was gone?
1. YES

5. NO
8. DK

9. NA
0. Inap, 1 in 1204; 5, 8-9 in 1209

1213 A12. INTERVIEWER CHECKPOINT


1. SPOUSE HAD (SERIOUS) ONGOING CONDITION

┌──────────────┐

│0 in 1214-1224├─────2. ALL OTHERS

└──────────────┘

0. Inap, 1 in 1204

1214 A13. Did you yourself have to provide physical care to your


(husband/wife) in the 6 months before (he/she) died?
1. YES

┌──────────────┐

│0 in 1215-1224├─────5. NO

└──────────────┤

├─────8. DK

└─────9. NA


0. Inap, 1 in 1204; 2 in 1213

1215 A13a. During the last 6 months of (his/her) life, about how many hours a week did you spend providing physical care for



your (husband/wife)?
Code HOURS (01-95)
95. 95 hours or more
98. DK

99. NA
00. Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214


1216 A13b. For how many weeks, months, or years did you provide such



care?--WEEKS


Code WEEKS (00-95)
98. DK

99. NA
00. WEEKS not given; Inap, 1 in 1204; 2 in 1213;

5, 8-9 in 1214

1217 A13b. For how many weeks, months, or years did you provide such



care?--MONTHS
Code MONTHS (00-60)
98. DK

99. NA
00. MONTHS not given; Inap, 1 in 1204; 2 in 1213;

5, 8-9 in 1214

1218 A13b. For how many weeks, months, or years did you provide such



care?--YEARS
Code YEARS (00-20)
98. DK

99. NA

00. YEARS not given; Inap, 1 in 1204; 2 in 1213;

5, 8-9 in 1214

1219 A13c. What kind of physical care did you provide?

1220

1221 MEDICAL


11. Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines


PERSONAL NEEDS (exc. 11)
21. Elimination; helped with/took to bathroom; cleaned up after

22. Bathing; gave baths; helped with bathing

23. Feeding; fed spouse, prepared meals, etc.

24. Help move around house; lifting; exercise/walking

25. Getting dressed

29. Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.




1219 A13c. Continued

1220

1221 31. Transportation; took spouse to doctor or other appointment; "drove him everywhere"


┌────────────┐

│Low Priority├─────95. "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97. Other

└─────────┘

98. DK


99. NA
00. Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214;

no further mention


1222 A14. (RB, P. 1) During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care? Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not


at all stressful?

1. VERY STRESSFUL

2. QUITE STRESSFUL

3. SOMEWHAT STRESSFUL

4. NOT TOO STRESSFUL

5. NOT AT ALL STRESSFUL
8. DK

9. NA
0. Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214


1223 A15. How much did caring for your (husband/wife) while (he/she) was ill keep you from carrying out other responsibilities in your life? Would you say a great deal, somewhat, a



little, or not at all?
1. A GREAT DEAL

2. SOMEWHAT

3. A LITTLE

4. NOT AT ALL


8. DK

9. NA


0. Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214

1224 A16. (RB, P. 2) Please tell me how true the following statement is. My (husband's/wife's) illness was physically painful for (him/her). Is this very true,



somewhat, a little, or not true at all?
1. VERY TRUE

2. SOMEWHAT TRUE

3. A LITTLE TRUE

4. NOT TRUE AT ALL


8. DK

9. NA
0. Inap, 1 in 1204; 2 in 1213; 5, 8-9 in 1214


A17. (RB, [STILL ON] P. 2) Please tell me how true each of the following statements is in the case of your (husband/wife).


1225 A17a. In the weeks before (his/her) death, things between my (husband/wife) and me were going well. Is this very true,



somewhat, a little, or not true at all?

1. VERY TRUE ┌───────────────┐

2. SOMEWHAT TRUE │USE SAME CODE │

3. A LITTLE TRUE │FOR V1226-1228 │

4. NOT TRUE AT ALL └───────────────┘

8. DK

9. NA
0. Inap, 1 in 1204


1226 A17b. My (husband/wife) lived a full life.

1227 A17c. During (his/her) lifetime my (husband/wife) was able to

achieve just about everything (he/she) hoped to achieve.

1228 A17d. I believe that my (husband/wife) is now in a better place



than (he/she) was on this earth.

1229 A18. Were you there with your (husband/wife) at the moment when



(he/she) died?
1. YES

5. NO
8. DK

9. NA
0. Inap, 1 in 1204

1230 A19. (RB, P. 3) Do you feel that your (husband/wife) did things that may have contributed to (his/her) death? Would you say no, not at all; yes, a little; yes, somewhat; or yes,



a great deal?

┌──────────────┐

│0 in 1231-1232├─────1. NO, NOT AT ALL

└──────────────┤

2. YES, A LITTLE

3. YES, SOMEWHAT

4. YES, A GREAT DEAL

├─────8. DK



└─────9. NA
0. Inap, 1 in 1204

Rev. 11/2/90

1231 A19a. What did (he/she) do that may have contributed to

1232 (his/her) death?

11. Smoking

12. Alcohol/drug use

13. Improper eating habits; wouldn't eat right foods/ follow diet

14. Lack of exercise; just sat around

19. Put off/refused medical care; "wouldn't follow doctor's orders"--n.e.c.


21. Emotional stress (self-induced or caused by others)

22. Physical stress/overwork; worked too hard; "pushed himself too much"

┌─────────┐

│Make Card├────────97. Other

└─────────┘



98. DK

99. NA
00. Inap, 1 in 1204; 1, 8-9 in 1230; no further

mention

1233 A20. (RB, STILL ON P. 3) Do you feel that anyone else did things that may have contributed to your (husband's/ wife's) death? (Would you say no, not at all; yes, a



little; yes, somewhat; or yes, a great deal?)

┌──────────────┐

│0 in 1234-1241├─────1. NO, NOT AT ALL

└──────────────┤

2. YES, A LITTLE

3. YES, SOMEWHAT

4. YES, A GREAT DEAL

├─────8. DK



└─────9. NA
0. Inap, 1 in 1204

1234(#1) A20a. Who do you feel may have contributed to the death?

1238(#2)

Use RELATIONSHIP MASTER CODE, except:

┌──────────────┐

│0 in 1239-1241├─────00. No person #2 listed; Inap, 1 in 1204; 1, 8-9

└──────────────┘ in 1233

Rev. 11/2/90

1235(#1) A20b. What did (PERSON #1) do?

1236(#1) A20d. What did (PERSON #2) do?

1239(#2)

1240(#2)

21. Caused emotional stress (exc. 41); son took drugs, was in jail; conflicts with (person at A20a)
23. Employment situation; dangerous/unhealthy working conditions

41. Doctor/hospital incompetent/negligent/unhelpful

91. Person shot/assaulted spouse (incl. in war)

┌─────────┐

│Make Card├────────97. Other

└─────────┘

98. DK

99. NA
00. Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238;



no further mention
1237(#1) A20c. (RB, STILL ON P. 3) Do you blame (PERSON #1) for your

1241(#2) (husband's/wife's) death?

A20e. (RB, STILL ON P. 3) Do you blame (PERSON #2) for your

(husband's/wife's) death?

(Would you say no, not at all; yes, a little; yes,

somewhat; or yes, a great deal?)
1. NO, NOT AT ALL

2. YES, A LITTLE

3. YES, SOMEWHAT

4. YES, A GREAT DEAL


8. DK

9. NA
0. Inap, 1 in 1204; 1, 8-9 in 1233; 00 in 1238




SECTION A: HOUSEHOLD LISTING AND CIRCUMSTANCE OF THE DEATH



VAR #
┌─────────────────────────────────────────┐

│SPOUSE DIED BY ACCIDENT/ MURDER/ SUICIDE │

└─────────────────────────────────────────┘

1301 A21. On what month, day and year did the (accident/murder/



suicide) happen?--MONTH
Code MONTH (01-12)
98. DK

99. NA

00. Inap, 2 in 1204

1302 A21. On what month, day and year did the (accident/murder/



suicide) happen?--DAY
Code DAY (01-31)
98. DK

99. NA
00. Inap, 2 in 1204


1303 A21. On what month, day and year did the (accident/murder/



suicide) happen?--YEAR
Code YEAR (1987-1995)
9998. DK

9999. NA
0000. Inap, 2 in 1204


1304 A22. INTERVIEWER CHECKPOINT


1. CAUSE WAS ACCIDENT

┌──────────────┐

│0 in 1305-1307├─────2. ALL OTHERS

└──────────────┘

0. Inap, 2 in 1204

1305 A22a. Was anyone else involved in the accident?


1. YES

┌──────────────┐

│0 in 1306-1307├─────5. NO

└──────────────┤

├─────8. DK

└─────9. NA


0. Inap, 2 in 1204 or 1304

1306 A22b. Who was that? I don't need a specific name.

1307

Use RELATIONSHIP MASTER CODE


00. Inap, 2 in 1204 or 1304; 5, 8-9 in 1305; no

further mention


1308 A23. Was (he/she) still alive when you first heard about the



incident?

1. YES

┌──────────────┐

│0 in 1309-1314├─────5. NO

└──────────────┤

├─────8. DK

└─────9. NA

0. Inap, 2 in 1204

1309 A23a. How long after that did (he/she) die?


Code # (01-60), except:
98. DK

99. NA
00. Inap, 2 in 1204; 5, 8-9 in 1308


1310 A23a. TIME UNIT


1. HOURS

2. DAYS


3. WEEKS

4. MONTHS


9. NA
0. Inap, 2 in 1204; 5, 8-9 in 1308


1311 A24. Was your (husband/wife) aware that (he/she) was dying?


1. YES

┌──────────────┐

│0 in 1312-1314├─────5. NO

└──────────────┤

├─────8. DON'T KNOW

└─────9. NA


0. Inap, 2 in 1204; 5, 8-9 in 1308

1312 A25. Did (he/she) seem to be at peace with dying?


1. YES

5. NO
8. DK

9. NA
0. Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

1313 A26. Did you and your (husband/wife) talk about the fact that



(he/she) might die?
1. YES

5. NO
8. DK

9. NA
0. Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

1314 A27. Did you and (he/she) talk about how you would deal with



being on your own once (he/she) was gone?
1. YES

5. NO
8. DK

9. NA

0. Inap, 2 in 1204; 5, 8-9 in 1308 or 1311

1315 A28. Before the (accident/murder/suicide) did your (husband/



wife) have any serious ongoing health problems?


1. YES

┌──────────────┐

│0 in 1316-1326├─────5. NO

└──────────────┤

├─────8. DK

└─────9. NA


0. Inap, 2 in 1204

1316 A29. In the six months before (he/she) died, did you yourself have to provide physical care to (him/her) because of a



serious ongoing health problem?
1. YES

┌──────────────┐

│0 in 1317-1326├─────5. NO

└──────────────┤

├─────8. DK

└─────9. NA


0. Inap, 2 in 1204; 5, 8-9 in 1315

1317 A29a. About how many hours a week did you spend providing physical care for (him/her) during the last six months of



(his/her) life?
Code HOURS (01-95)
95. 95 hours or more
98. DK

99. NA
0. Inap, 2 in 1204; 5, 8-9 in 1315 or 1316


1318 A29b. For how many weeks, months, or years did you provide such



care?--WEEKS
Code WEEKS (00-95)
98. DK

99. NA
00. WEEKS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

1319 A29b. For how many weeks, months, or years did you provide such

care?--MONTHS
Code MONTHS (00-60)
98. DK

99. NA


00. MONTHS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

1320 A29b. For how many weeks, months, or years did you provide such

care?--YEARS
Code YEARS (00-20)
98. DK

99. NA
00. YEARS not given; Inap, 2 in 1204; 5, 8-9

in 1315 or 1316

1321 A29c. What kind of physical care did you provide?

1322

1323 MEDICAL


11. Medical care; gave medication/shots; changed dressings/tubes/bags; monitored machines
PERSONAL NEEDS (exc. 11)
21. Elimination; helped with/took to bathroom; cleaned up after

22. Bathing; gave baths; helped with bathing

23. Feeding; fed spouse, prepared meals, etc.

24. Help move around house; lifting; exercise/walking

25. Getting dressed

29. Other personal needs care: brushing hair (or teeth); giving rubdowns, shaving, etc.




1321 A29c. Continued

1322

1323 31. Transportation; took spouse to doctor or other appointment; "drove him everywhere"

┌────────────┐

│Low Priority├─────95. "Everything"; "complete care"

└────────────┘

┌─────────┐

│Make Card├────────97. Other

└─────────┘

98. DK

99. NA

00. Inap, 2 in 1204; 5, 8-9 in 1315 or 1316; no



further mention

1324 A30. (RB, P. 4) During the 6 months before (he/she) died, how stressful was it for you to care for (him/her) or to arrange for (his/her) care? Was it very stressful, quite stressful, somewhat stressful, not too stressful, or not



at all stressful?
1. VERY STRESSFUL

2. QUITE STRESSFUL

3. SOMEWHAT STRESSFUL

4. NOT TOO STRESSFUL

5. NOT AT ALL STRESSFUL
8. DK

9. NA
0. Inap, 2 in 1204; 5, 8-9 in 1315 or 1316


1325 A31. How much did caring for your (husband/wife) during the 6 months before (he/she) died keep you from carrying out other responsibilities in your life? Would you say



a great deal, somewhat, a little, or not at all?

1. A GREAT DEAL

2. SOMEWHAT

3. A LITTLE

4. NOT AT ALL


8. DK

9. NA
0. Inap, 2 in 1204; 5, 8-9 in 1315 or 1316

1326 A32. (RB, P. 5) Please tell me how true the following statement is. My (husband's/wife's) condition was physically painful for (him/her). Is this very true,




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